MRI results

Got a letter from the Dr saying I have tendonitis and bursitis in multiple tendons of my rotator cuff.  No significant arthritis.  I would assume there is some arthritis but not enough to worry about. Now to search the Internet for shoulder stretches and exercises to help so I don’t have to go to physical therapy or get a shot in the shoulder.  I already have bursitis in the hips.  Is this common with ra?

So very sore

Been feeling OK lately.  Not the best but Ok.  My shoulder has been messed up since July and I go for an mri tomorrow.  My lower joints have been achy but not pounding, so nothing I can’t handle.

Sunday I went to the local college campus to do a 5k walk with friends. Parked half a mile away and took about am hour before our wave got to go. By the end of the walk my shoe was rubbing on my ankle and my hips, toes and heels hurt but I had a blast.

I said goodbye to my friends, had a good time despite the pain.  I went to follow the path to get to my car and to my dismay there were 6 different ways I could go. 

I am very bad with directions. Just awful. I have mini panic attacks if I have to find someplace new. Knowing this I paid careful attention to landmarks. When I went to find my car, the landmarks were no help.  Needless to say I wandered the campus for an hour and 45 min before I found the parking lot I was in. I managed 8 miles total between the walk and the wandering.  No wonder I am so sore.

My husband yelled at me because he can’t figure out how someone can lose a car.  My friend yelled because I didn’t call her to have her help me.  Everyone assumes it was pure stubbornness on my end and yes, some of it was.  I figured it had to be around the next building. Honestly it was more anger at myself and embarrassment that caused me not to call.

Sad day

Started having issues with my shoulder.  Hurts to drive, walk, or lay down. I didn’t go see my friend on Tues and it takes a lot for me not to go because we just sit there. Canceled my walk yesterday also because of the pain. Called in sick today.  None of these are normal for me.  I decided to take a day of laying in bed with a heating pad in the hopes it will feel better.

A friend of mine owns a bar, his grandpa came in all the time.  This man loved company and his wife was in a nursing home with alzheimer and he would see her twice a day. He also took in his great grandson his last two years of high school.  (This kid worked, did musicals, and a 4.0. So not a troubled kid). He was also fighting cancer. During all of this he smiled, laughed and loved everyone around him. We all called him grandpa and we treated him as such.  This sweet old man that we all loved as much as our own grandparents passed away last night.  He is one person that will be missed by hundreds and will always hold a place in our hearts.  I love you grandpa, thank you for the laughter, the hugs and just the joy of being around you these last 7 years.

Very sad day as he will be missed but the memories he gave us and knowing how sick he was at the end allows me to be more grateful for knowing him than sad.

Long time

Been almost three months since I posted. I have been stalking everyone but not posting. Couple of updates.  I am now walking 2.5 miles 2-3 times a week. We will increase the distance every week. Some friends and I have created a “walking club”. We all hang out at the same bar and have become good friends. 

Second update, I smoke and have for way too many years. I got myself a vapor cigarette a couple weeks ago and have gone from a pack a day to half a pack. For anyone who smokes, you know how hard this is but it is working. Want to be cigarette free by end of summer and nicotine free by the end of the year.

As far as “RAndall”, now that the severe winter is over, he is being less of a beast. Hoping to strengthen muscles and weigh less before he kicks back up. We will see how that goes.  Lol

Auugghh

I brought my fmla papers to my dr office to fill out. I got a call from my fmla admin saying they hadn’t gotten anything and would extend it. I called my dr office and the nurse was a huge bitch.  When I was first diagnosed I had fmla and I renewed it twice. Even with that I feel guilty calling in. I only used two half days in a one year span. I have had two flares in six months, in that time, I fell on the ice twice (Thank goodness I was not in a flare at the time).

I decided I would get them renewed at the time I saw the Dr. The nurse who returned my call when I left a message asking why they had not been filed did not fill me with hope. She asked if this was something new. No, I have been diagnosed for four years. She asked a couple more questions that were irritating, then she asked me. … How often do you think you will be off? How in the hell would I know? Ummm, when it acts up? I don’t take off unless I can’t type.  I spend 8-10 hours at a computer. I can adjust the way I work to compensate any other joint, just not my hands. She didn’t like that. She asked again, how often. Hmmm, whenever my ra decides to act up. I blew up. Seriously? I didn’t realize this would be a problem. I didn’t realize typing all day with ra would cause me to be treated as if I was a criminal. She changed her tune but I had enough.  I told her I couldn’t answer her questions and if I did it would be lies.

I have not been content with my dr in a while. He has never taken xrays (my gp did of one hand before he referred me) he does not know my toes are curling and does not know what my pinkie or thumb are doing. I didn’t feel like I had the chance. You can tell me to get a new doc but I only have a couple I can see with my ins. I won’t go to prevea (they allowed my daughters step mom to get her out on add meds) and the other two are in the same clinic.