As I am sure you all know, I am a little off. I will make a joke or of almost anything. And normally not in an a way that is suitable for children. Ha ha. Seriously, I named my RA randall and then used randall for my twitter and WordPress. I make jewelry and named it twistedbeader because of my twisted hands and mind, but back to my reason for this post (get ready, I am going of the rails)
Have you ever felt like cereal (or a candy bar)? Today, my joints keep making popping sounds, every time I hear it, I can’t resist! Snap, crackle, pop! Rice crispies! And my mental state? Yup, sure feel like a fruit loop. No Tony the Tiger for me today.
Hope everyone got a small giggle from this! Oh and just an fyi, this is me without enough sleep.
It’s amazing. I got my healthminder journal and thinking I would use it for just tracking pain. I love that it is much more than that. I can track weather, what I eat, pollen counts and anything I take. The diagrams allow my to track more than one body part and in the back it allows me to write in my detail anything I am feeling or noticing and write down questions for my dr.
Also thanking my husband because he threw his back out, even though he is in pain, he still asks if I am OK, helps me out and still does snow removal because I have fallen twice this year already. I had a cold and all he thought about was if I was OK even though he was hurting too and it was his birthday.
Now, my blogging family, Thank you for the support. I was diagnosed in 2010, my friends listen and support but unless you have RA you truly can not understand the pain, fatigue, and fear that comes with this. So here is a Thank you for everyone who writes posts and who read and comments on mine. I no longer feel alone.
You would think by now I would not be suprised when I find damage. Ha ha, guess again. For over a week I have been batteling something, maybe a cold or some other virus, I am not real sure. Not too bad but my sinuses are packed and into my ears causing me to feel “off”. While sitting in bed where I have spent most of the last week with warm compresses on my face and sleeping, or just relaxing with a book, I happened to see my thumb when turning my page on my nook. Oh shit! Really? Looking at the top of my hand, if I tip my wrist up slighltly you can see my thumb has a curve. The inside looks almost strait but outside looks hooked by about 45 degrees.
Remember as kids when we would stick our pinkies out when playing tea party? Well mine look like that all the time. My pinkie toes are turning sideways as if the toenails are playing hide and seek, I already have nodules on all my fingers and toes ( you can feel them but not terribly visible yet) and now my thumb is playing captain hook. Thanks RAndall, I don’t want to play with you anymore. Go away, you are a bully, didn’t anyone teach you manners??.
As you can see by how I describe things, I might be a little nuts, but without a sense of humor, why in the hell should I bother. Hope everyone is having a “good” day today.
I started having pain in the late 90′s in my hands and had pain in my hands and lumps on my knuckles. I also was tired all the time and my hips hurt. I thought I was tired because my daughter was very young and I was busy between work and being a mom. I told myself that my hips hurt because of a car accident from years prior. And my hands hurt because I was now working an office job.
It is amazing how easy you can explain things away. I played this game until 2010. Yup, you heard me, a decade. One of my Co workers/friend kept saying RA and she just went through months of dr appointments with her husband. I of course waited another year.
At the time of my dx my husband actually was living in another state going to school. I was the sole financial and emotional foundation in my home. I took my meds and went on with my day. I told my husband’s family and they acted like it was nothing. Same with my own family. When my husband got home I still didn’t say too much. It wasn’t worth it as no one understood. I spent hours looking for a site like this. I found one and she passed away. I quit looking for pages after that.
One day I had to use chairs to get to the bathroom. I think my husband thought I was exaggerating. Then came the night I was in tears and apologizing because he did not marry a cripple. One and only time I have broken down in front of anyone.
Long journey but I have to remember. It isn’t “why me”? But why not me? A certain number of people will get diagnosed every year, so by saying why me, it is wishing it upon someone else and what makes me more special than someone else?
You expect people to not care or understand but not your own mother. I was talking to her today and telling her how my husband wants me to get a disability parking pass and that I am not OK with that. She actually asked me. …. “Why would you need that for your hands?” Yes this came from my own mom. I had to explain to her that it is in all my joints but my spine. My hands, feet, and hips are the worst. And before she cut me off like normal, I was able to explain a little about what it is and that there were days I almost had to crawl to the bathroom but have enough things to lean on.
My grandma had it since her 30′s, she watched her pain and struggles, so I can’t seem to get over her not wanting to understand?
I have never been a fan of winter. I understand there are still things to do. Ice fishing, snow shoeing, snowmobiling, and skiing. All of these things make me cold. I get cold just thinking of them. Not only am I trying to stay warm, there is less sun, no colors but white brown and black, and summer where you get some storms, everything is pretty consistent unlike winter. This winter we have gone from severe temps to snow and back to severe temps. Well RAndall feels this is when it is time to play, runs all over, pounds on my joints and can never catch the sneaky thing. 39 days until we set the clocks forward and it will be light out later. CANT FREAKING WAIT!!!!
I will admit I only survive winter by hibernating and having a countdown to more sunlight. Did I mention, I hate winter?
For my hands I do basic exercises. I start by bending each finger to my palm one at a time, then bend each finger tip with my other hand. I extend my fingers strait up and then into a fist and the last, I make an ok sign with each of my fingers. I hold each position for ten seconds. Doing these help my hands but they also gauge how much my fingers can move.
I now need to find some exercises that also help my shoulders, elbows, hips, knees, and ankles. If anyone has some that worked for them, please share. It would be wonderful to get more range of motion so I can go back to the gym and strengthen the muscles around these joints.